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Resources: Resources

Resources:

Autism and Pregnancy, Royal College of Midwives i-learn module

Author: Diane Fox RM PGCPSE

https://www.ilearn.rcm.org.uk/course/info.php?id=1022



You Tube:


‘Float’ short film by Disney. Short film shows the wonder of Autism and the effect on the family- https://m.facebook.com/watch/?v=2851819381541715&_rdr


Rosie King- Autism Advocate: ’My Autism and Me’ – discover what it is like to be autistic

https://www.ted.com/talks/rosie_king_how_autism_freed_me_to_be_myself?language=en


Short clip from TV Show Operation Ouch exploring what it feels like to be Autistic:

https://www.youtube.com/watch?v=woalwlq9PLw


Purple Ella – autism advocate discusses what it is like to be autistic and pregnant:

https://www.purpleella.com/2017/10/19/autism-and-pregnancy/


‘Promoting Autism Awareness in Midwifery Practice’, Virtual International Day of the Midwife Virtual Online Conference (VIDM) 2020, Diane Bains (now Fox) RM - Midwife with expertise in Autism: https://www.youtube.com/watch?v=Hfhl1JdAheg


‘Autism spectrum disorders in the Perinatal period’ Virtual International Day of the Midwife Virtual Online Conference (VIDM) 2022, Sophie Rayner, Student Midwife studying undergraduate Masters in Science in Midwifery with Leadership

https://www.youtube.com/watch?v=Bksc5NFMKUE

Sarah Hendrickx. Speaker about Autism and the presentation of Autism in girls: https://m.youtube.com/watch?v=diE7f6CKj6c

Professor Tony Attwood- Author and speaker discusses Autism presentation in girls/wome: https://m.youtube.com/watch?v=LuZFThlOiJI

Chris Varney – Autism Advocate and CEO of I CAN NETWORK – supporting autistic children: https://www.youtube.com/watch?v=T1HQKB2txgY

TV Shows:

Atypical – US TV show centred around a family with a teenager with Autism

The A Word – UK TV show around a family and the diagnosis of their youngest son with Autism

Websites:

Maternity Autism Research Group (MARG) – Bringing Researchers and Midwives together to improve maternity care for Autistic people.

https://www.maternityautismresearchgroup.co.uk/


Autistic Girls Network- charity advocating for autistic girls and women:

https://autisticgirlsnetwork.org/

Autism Toolbox: UK online resource to support learning in education for children with Autism.

http://www.autismtoolbox.co.uk/home

National Autistic Society (NAS)

https://www.autism.org.uk/advice-and-guidance/what-is-autism

UK Charity with lots of information about Autism and support.

Lorna Wing, UK

https://www.autism.org.uk/directory/the-nas-lorna-wing-centre-for-autism

Diagnostic Service – to diagnose Autism- specialises in diagnosis of Pathological Demand Avoidance (PDA) and specialise in diagnosis in girls.

The Girl with the Curly Hair – Alis Rowe – autism advocate and educator – books, seminars and training on autism:

https://thegirlwiththecurlyhair.co.uk/

TED Talks:

Temple Grandin: Author and advocate about Autism in USA

https://www.ted.com/talks/temple_grandin_the_world_needs_all_kinds_of_minds?language=en


Rosie King: Teenage autism advocate: https://www.ted.com/talks/rosie_king_how_autism_freed_me_to_be_myself?language=en


Facebook Groups: 


PDA Pathological Demand Avoidance Support – Families & Practitioners

Not Fine in School: Family Support for School Attendance Difficulites

Aspergers/Asd UK Mums Support

Sensory Processing Disorder UK (SPDUK)


Books:


See Autistic Girls Network for comprehensive list of books, apps, videos about autism: https://autisticgirlsnetwork.org/resources/


Lana Grant – Autism Advocate discusses her experience of motherhood and autism in her book:

https://www.lana-grant.co.uk/publications.php

Articles:

Bush, H.H., Williams, L.W. and Mendes, E. (2020) ‘Brief Report: Asexuality and Young Women on the Autism Spectrum’, Journal of autism and developmental disorders, 51(2), pp. 725–733.

 

Department of Health and Social Care (DHSC 2021) https://www.gov.uk/government/publications/national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026/the-national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026

 


Hampton, S. et al. (2021) ‘A qualitative exploration of autistic mothers’ experiences II: Childbirth and postnatal experiences’, Autism : the international journal of research and practice


Hampton, S. et al. (2022) ‘Autistic mothers’ perinatal well-being and parenting styles’, Autism : the international journal of research and practice, pp. 13623613211065544–13623613211065544.


Kenny et al (2015). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20(4), 442-462. 


McCrossin, R. (2022) Finding the True Number of Females with Autistic Spectrum Disorder by Estimating the Biases in Initial Recognition and Clinical Diagnosis. Children 2022, 9, 272.


Pohl, A.L. et al. (2020) ‘A comparative study of autistic and non-autistic women’s experience of motherhood’, Molecular autism, 11(1), pp. 3–30


Samuel, P. et al. (2021) ‘Sensory challenges experienced by autistic women during pregnancy and childbirth: a systematic review’, Archives of gynecology and obstetrics, 305(2), pp. 299–311.


Simantov, T ; Pohl, A ; Tsompanidis, A ; Weir, E ; Lombardo, M ; Ruigrok, A ; Smith, P ; Allison, C ; Baron-Cohen, S ; Uzefovsky, F  (2022) ‘Medical symptoms and conditions in autistic women’, Autism : the international journal of research and practice, 26(2), pp. 373–388.


Taylor, M. (2014) ‘Caring for a woman with autism in early labour’, British journal of midwifery, 22(7), pp. 514–518


Warrier, V. and Baron-Cohen, S. (2021) ‘Childhood trauma, life-time self-harm, and suicidal behaviour and ideation are associated with polygenic scores for autism’, Molecular psychiatry, 26(5), pp. 1670–1684.

 

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