Resources:
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Autism and Pregnancy, Royal College of Midwives i-learn module
Author: Diane Fox RM PGCPSE
https://www.ilearn.rcm.org.uk/course/info.php?id=1022
You Tube:
‘Float’ short film by Disney. Short film shows the wonder of Autism and the effect on the family- https://m.facebook.com/watch/?v=2851819381541715&_rdr
Rosie King- Autism Advocate: ’My Autism and Me’ – discover what it is like to be autistic
https://www.ted.com/talks/rosie_king_how_autism_freed_me_to_be_myself?language=en
Short clip from TV Show Operation Ouch exploring what it feels like to be Autistic:
https://www.youtube.com/watch?v=woalwlq9PLw
Purple Ella – autism advocate discusses what it is like to be autistic and pregnant:
https://www.purpleella.com/2017/10/19/autism-and-pregnancy/
‘Promoting Autism Awareness in Midwifery Practice’, Virtual International Day of the Midwife Virtual Online Conference (VIDM) 2020, Diane Bains (now Fox) RM - Midwife with expertise in Autism: https://www.youtube.com/watch?v=Hfhl1JdAheg
‘Autism spectrum disorders in the Perinatal period’ Virtual International Day of the Midwife Virtual Online Conference (VIDM) 2022, Sophie Rayner, Student Midwife studying undergraduate Masters in Science in Midwifery with Leadership
https://www.youtube.com/watch?v=Bksc5NFMKUE
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Sarah Hendrickx. Speaker about Autism and the presentation of Autism in girls: https://m.youtube.com/watch?v=diE7f6CKj6c
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Professor Tony Attwood- Author and speaker discusses Autism presentation in girls/wome: https://m.youtube.com/watch?v=LuZFThlOiJI
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Chris Varney – Autism Advocate and CEO of I CAN NETWORK – supporting autistic children: https://www.youtube.com/watch?v=T1HQKB2txgY
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TV Shows:
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Atypical – US TV show centred around a family with a teenager with Autism
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The A Word – UK TV show around a family and the diagnosis of their youngest son with Autism
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Websites:
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Maternity Autism Research Group (MARG) – Bringing Researchers and Midwives together to improve maternity care for Autistic people.
https://www.maternityautismresearchgroup.co.uk/
Autistic Girls Network- charity advocating for autistic girls and women:
https://autisticgirlsnetwork.org/
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Autism Toolbox: UK online resource to support learning in education for children with Autism.
http://www.autismtoolbox.co.uk/home
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National Autistic Society (NAS)
https://www.autism.org.uk/advice-and-guidance/what-is-autism
UK Charity with lots of information about Autism and support.
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Lorna Wing, UK
https://www.autism.org.uk/directory/the-nas-lorna-wing-centre-for-autism
Diagnostic Service – to diagnose Autism- specialises in diagnosis of Pathological Demand Avoidance (PDA) and specialise in diagnosis in girls.
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The Girl with the Curly Hair – Alis Rowe – autism advocate and educator – books, seminars and training on autism:
https://thegirlwiththecurlyhair.co.uk/
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TED Talks:
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Temple Grandin: Author and advocate about Autism in USA
https://www.ted.com/talks/temple_grandin_the_world_needs_all_kinds_of_minds?language=en
Rosie King: Teenage autism advocate: https://www.ted.com/talks/rosie_king_how_autism_freed_me_to_be_myself?language=en
Facebook Groups:
PDA Pathological Demand Avoidance Support – Families & Practitioners
Not Fine in School: Family Support for School Attendance Difficulites
Aspergers/Asd UK Mums Support
Sensory Processing Disorder UK (SPDUK)
Books:
See Autistic Girls Network for comprehensive list of books, apps, videos about autism: https://autisticgirlsnetwork.org/resources/
Lana Grant – Autism Advocate discusses her experience of motherhood and autism in her book:
Articles:
Bush, H.H., Williams, L.W. and Mendes, E. (2020) ‘Brief Report: Asexuality and Young Women on the Autism Spectrum’, Journal of autism and developmental disorders, 51(2), pp. 725–733.
Department of Health and Social Care (DHSC 2021) https://www.gov.uk/government/publications/national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026/the-national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026
Hampton, S. et al. (2021) ‘A qualitative exploration of autistic mothers’ experiences II: Childbirth and postnatal experiences’, Autism : the international journal of research and practice
Hampton, S. et al. (2022) ‘Autistic mothers’ perinatal well-being and parenting styles’, Autism : the international journal of research and practice, pp. 13623613211065544–13623613211065544.
Kenny et al (2015). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20(4), 442-462.
McCrossin, R. (2022) Finding the True Number of Females with Autistic Spectrum Disorder by Estimating the Biases in Initial Recognition and Clinical Diagnosis. Children 2022, 9, 272.
Pohl, A.L. et al. (2020) ‘A comparative study of autistic and non-autistic women’s experience of motherhood’, Molecular autism, 11(1), pp. 3–30
Samuel, P. et al. (2021) ‘Sensory challenges experienced by autistic women during pregnancy and childbirth: a systematic review’, Archives of gynecology and obstetrics, 305(2), pp. 299–311.
Simantov, T ; Pohl, A ; Tsompanidis, A ; Weir, E ; Lombardo, M ; Ruigrok, A ; Smith, P ; Allison, C ; Baron-Cohen, S ; Uzefovsky, F (2022) ‘Medical symptoms and conditions in autistic women’, Autism : the international journal of research and practice, 26(2), pp. 373–388.
Taylor, M. (2014) ‘Caring for a woman with autism in early labour’, British journal of midwifery, 22(7), pp. 514–518
Warrier, V. and Baron-Cohen, S. (2021) ‘Childhood trauma, life-time self-harm, and suicidal behaviour and ideation are associated with polygenic scores for autism’, Molecular psychiatry, 26(5), pp. 1670–1684.
Legislation
Autism Act 2009 https://www.legislation.gov.uk/ukpga/2009/15/contents
Disability Act 2010 https://www.legislation.gov.uk/ukpga/2010/15/contents